15 Apr
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INTRODUCING CRISPR

New vistas are constantly opening with the advent of technology in the world of medicine! The recent innovation in biomedicine is CRISPR-Cas9 mechanism, a relatively new gene-editing technique that may be a potential cure for sickle cell disorder and other genetic diseases. CRISPR-Cas9 (abb.Clustered Regularly Interspaced Short Palindromic Repeats/CRISPR associated protein-9) was co-invented by Dr. […]

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15 Apr
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HELP!!! I NEED HELP!!!

The value of timely help for persons living with chronic diseases like sickle cell disorder cannot be quantified. That’s why having a support group matters in times of crises and out of it. The support group is not necessarily in the number but in the impact! Who can help with a meal? Who can help […]

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20 Mar
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‘LIFE IS BEAUTIFUL’ CAMPAIGN KICKS OFF IN APRIL

Addiction is a family disease. One person may use, but the whole family suffers.   One of the greatest need in any chronic illness especially when it comes to sickle cell disease is the need for pain medication. From Opioids to NSAIDS, to very mild drugs the list is endless. However, the use of drugs, if not properly […]

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19 Mar
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‘THE USE OF DATA IN TELLING AUTHENTIC STORIES’ TAKES CENTER STAGE AT #SMW2019

The Third Sector often touted as the unofficial government due to its strides in various sphere of society like education, health, gender advocacy, energy, and environment often require relevant data in order to tell creative stories that will help them achieve their organizational goals and influence social change. This formed the backdrop of SAMI’s Social […]

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19 Mar
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MEET THE 17-YEAR OLD STUDYING CHRONIC PAIN IN SCD

Managing chronic pain is one of the biggest issues in sickle cell disorder, it accounts for the majority of hospitalizations in people living with sickle cell disorder and for much of financial expense during those hospital visits. Regular research cannot but go into this all-important area. One of the individuals that are helping to find […]

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28 Jan
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#RunForACell at the Access Bank Lagos City Marathon

The much anticipated Access Bank Lagos City Marathon 2019 holds this weekend. Are you ready? SAMI will be running also! We #RunForSCD and #RunForACause to raise funds to support people living with sickle cell disorder who need immediate care and have insurmountable medical bills to pay. On her Facebook page, Toyin Adesola, Executive Director, Sickle […]

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22 Jan
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THOUSANDS JOIN SAMI TO GATHER IN LAGOS TO DISCUSS THE FUTURE OF MEDIA, STORIES, DATA & MORE AT THE SOCIAL MEDIA WEEK

Sickle Cell Advocacy and Mgt Initiative Partners with Social Media Week Lagos to Host The Use of Data in Telling Authentic Stories The SMW Lagos 2019 theme “STORIES: With Great Influence Comes Great Responsibility” will explore the power in the stories we tell, and how as content creators, policymakers, brands, journalists and citizens we can influence our […]

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18 Jan
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HERE’S OUR TWELVE BASKETS FOR 2018

2018 was a great year for us at Sickle Cell Advocacy and Management Initiative (SAMI), here’s a brief into our activities in the course of the year. 10 Hearty Cheers to SAMI – Sickle Cell Advocacy and Management Initiative celebrated her 10th year anniversary with a private dinner/fundraising event. #INoBeWaste trended – SAMI’s social media […]

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17 Jan
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CSS HOLDS END OF THE YEAR HANGOUT

It was a time to retreat and relax on 24th November, 2018 for Club Still Standing (CSS), the youth arm of Sickle Cell Advocacy and Management Initiative (SAMI) as the group held its end of the year hangout. The hangout which gathered current and former members of the club held in the serene atmosphere of […]

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17 Jan
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AND IT’S A WRAP FOR 2018 XTRACARE

‘Xtra-delightful, Xtra-large, Xtra-delicious’ were some of the comments of visibly elated attendees of SAMI’s monthly ‘Xtracare’ Sickle Cell Free Clinic when she held her 2018 End of the Year party on Sat. 15th December, 2018. Now in her fifth year, the ‘Xtracare’ clinic – one of the flagship programs of Sickle Cell Advocacy and Management […]

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