07 Jun
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RED UMBRELLA WALK

JUNE 19 is World Sickle Cell Day all over the world. And we celebrate big! Annually, we engage the city in the Red Umbrella Walk! Red Umbrella Walk is an awareness walk aimed at reaching people on the streets with the right information about sickle cell disorder. Donning red shirts and hoisting red umbrellas, we […]

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16 May
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LITTLE SEYIFUNMI IS A SUCCESS STORY AMONGST MANY

One life at a time…’ is very apt for the success story that little Seyifunmi Ayinde has become for SAMI. When 6-year-old Seyifunmi a little child with sickle cell disease, suffered a mild stroke back in 2017, I am sure it was the last thing her mother expected.  After a series of test including a […]

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16 May
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SAMI HOSTS STAKEHOLDERS’ SUMMIT

A Stakeholders’ Roundtable Summit on Sickle Cell Disorder was recently hosted by Sickle Cell Advocacy and Management Initiative (SAMI) as part of the enlightening radio show on sickle cell awareness, Touch A Cell with Toyin and the Gang. The parley which was held with the partnership of the Public Affairs Office of the United States […]

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23 Apr
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GENOTYPE TEST MADE EASY

Your blood genotype is one vital information you need to know about your body! This is what makes you know the genetic makeup of your red blood cells, that is, if Hb AA, Hb AS, Hb AC, Hb SS, Hb SC, Hb CC, or the other variants. It is necessary for individuals to know their […]

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15 Apr
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INTRODUCING CRISPR

New vistas are constantly opening with the advent of technology in the world of medicine! The recent innovation in biomedicine is CRISPR-Cas9 mechanism, a relatively new gene-editing technique that may be a potential cure for sickle cell disorder and other genetic diseases. CRISPR-Cas9 (abb.Clustered Regularly Interspaced Short Palindromic Repeats/CRISPR associated protein-9) was co-invented by Dr. […]

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15 Apr
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HELP!!! I NEED HELP!!!

The value of timely help for persons living with chronic diseases like sickle cell disorder cannot be quantified. That’s why having a support group matters in times of crises and out of it. The support group is not necessarily in the number but in the impact! Who can help with a meal? Who can help […]

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20 Mar
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‘LIFE IS BEAUTIFUL’ CAMPAIGN KICKS OFF IN APRIL

Addiction is a family disease. One person may use, but the whole family suffers.   One of the greatest need in any chronic illness especially when it comes to sickle cell disease is the need for pain medication. From Opioids to NSAIDS, to very mild drugs the list is endless. However, the use of drugs, if not properly […]

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19 Mar
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‘THE USE OF DATA IN TELLING AUTHENTIC STORIES’ TAKES CENTER STAGE AT #SMW2019

The Third Sector often touted as the unofficial government due to its strides in various sphere of society like education, health, gender advocacy, energy, and environment often require relevant data in order to tell creative stories that will help them achieve their organizational goals and influence social change. This formed the backdrop of SAMI’s Social […]

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19 Mar
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MEET THE 17-YEAR OLD STUDYING CHRONIC PAIN IN SCD

Managing chronic pain is one of the biggest issues in sickle cell disorder, it accounts for the majority of hospitalizations in people living with sickle cell disorder and for much of financial expense during those hospital visits. Regular research cannot but go into this all-important area. One of the individuals that are helping to find […]

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28 Jan
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#RunForACell at the Access Bank Lagos City Marathon

The much anticipated Access Bank Lagos City Marathon 2019 holds this weekend. Are you ready? SAMI will be running also! We #RunForSCD and #RunForACause to raise funds to support people living with sickle cell disorder who need immediate care and have insurmountable medical bills to pay. On her Facebook page, Toyin Adesola, Executive Director, Sickle […]

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