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OUR IDEALS

VISION | MISSION | VALUES

VISION

To have a society where sickle cell disorder is reduced and people with sickle and their families are able to live healthy, positive and productive lives.

MISSION

To empower and improve the lives of people, especially with sickle cell disorder through strategic partnership by educating, advocating, creating awareness and providing support.

VALUES

 

HAVING FAITH in God at all times for in Him all things are possible.

COMMITTED to ethics and the integrity of purpose doing the right and not the convenient thing

BEING resilient through all things , we can surmount every obstacle 

WE BELIEVE in creativity, innovation and being empowered. Here lies the value of being productive

WE EMBRACE team work and collaboration, for through it we can achieve wonderful things

FINALLY BEING empathetic, compassionate and respectful, valuing and encouraging each other and the organization.

WHY WE EXIST

WHY WE EXIST

Have you ever accidentally hit your smallest toe against a hard object? Did you remember the sharp pain you felt? Have you accidentally slammed your car door against your small finger? Can you remember the pain you felt? Have you had this nagging headache that seemed like a sledge hammer is hitting your forehead? Can you remember how painful it was?

These pains you associate with these accidents or incidents are nothing compare to the pain they go through. Their pains are excruciating and may lead to deformity and sometimes death.

We are not talking about a soldier captured and tortured by the enemies; we are talking about those living with sickle cell anaemia disorder (SCD). These special blood people need extra attention and care. And that is why Sickle Cell Advocacy and Management Initiative was setup.

OUR ORIGIN

FOUNDED IN 2008 
BY MS TOYIN ADESOLA.

Sickle Cell Advocacy and Management Initiative (SAMI) is non-governmental organization established in 2008 and registered under the Corporate Affairs Commission Incorporated Trustees Act (28806). It was founded by Ms Toyin Adesola who has been through the traumatic challenges of living with sickle cell all her life. And she deemed it necessary to help those who may not be privilege, like her, to have reasonable medical attention, care and emotional support.

Due to ignorance, they suffer extreme pain, sorrow, low self-esteem and stigmatization and many lack proper and affordable medical care in a disorder that is financially and socially draining.

When an uneducated family has to take care of not one but sometimes up five children with Sickle Cell Disorder, they can hardly afford basic needs let alone medical needs, so there is need for a proper support system.  

WHY YOU SHOULD JOIN US

THERE IS AN URGENCY
TO SAVE MORE LIVES.

The lack of proper medical support, halfway house/shelters, mentoring and empowerment programmes, therefore does not help in any way to mitigate the suffering of people with the disorder and their families.

Then there is an urgent need to provide adequate interpersonal and affordable basic management health care and empowerment programs to people with Sickle Cell Disorder.

A country that has 1 in 4 people carrying the sickle cell trait necessitates educating the society (especially the youth population) about the importance of knowing their genotype, so they can make informed choices.

Join us to empower and improve the lives of people, especially with sickle cell disorder through strategic partnership via education, empowering, creating awareness, and providing support

OUR TEAM

OUR BOARD

MANAGEMENT & STAFF

Oluwakemi Akintola

Head Volunteers

Ezekiel Ogbu

Technical Assistant

Bolaji Ibrahim

Office Administrator

Maureen Nwachi

Project Coordinator

Lanre Olayokun

Programmes Manager

Toyin Adesola

Executive Director

OUR IMPACT

ADVOCACY

One of the major objectives as an organization in achieving our objective towards advocacy and awareness is to create partnerships that bring are mission to fore.

Consequently we have partnered with other sickle cell organizations being a member of the  coalition on sickle cell NGOs consisting of Sickle Cell Foundation Nigeria, Dabma Foundation, Genotype Foundation, Tony May Foundation, Sickle Cell Aid Foundation (SCAF), Couple and Kids Initiative, Marvel Sickle Cell Foundation, Crimsonbow Sickle Cell Initiative, Noah’s Ark Foundation, Soulage Foundation, Nirvana Initiative, KAL Foundation to create programs and event that will improve the perception of people on the disorder and push for better treatment and management of people with the disorder

SUCH PROGRAMS INCLUDE
Beneficiaries and Voluntteer at the RED Umbrella walk 2015

RED UMBRELLA CHARITY WALK,

An annual event designed to create awareness, advocate and disseminate information about sickle cell to the grassroots communities and the society at large .
It is held every year to commemorate the June 19th world sickle cell day and involves a coalition of Sickle Cell NGOs in Nigeria, with an effort to bring to fore the effects of sickle cell disorder to an individual and society at large.

The Red Umbrella walk involves 1000 participants from all walks of life from captains of industries, celebrities, government personnel to friends of sickle cell and people living with sickle cell.

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TRAINING PROGRAMS

This to help improve knowledge of care givers, counselors and medical personnel in the way the relate and disseminate information to people with sickle cell and their families.

AWARENESS
THERE ARE MULTIPLE WAYS YOU CAN HELP OTHERS TO CHANGE THEIR LIVES

TOUCH A CELL DANCE-A-THON

aims to educate children and youths in Public and Private Secondary Schools at various Local Government Areas on the disorder.  The focus is on the importance of these young people knowing their genotype as well as breaking barriers of ignorance and stigma.

The “Dance-a-Thon” is a dance competition which involves Secondary School Senior Students dance groups and Youth groups. They compete for prizes, and they are expected to perform a dance that depicts Sickle Cell.  This is accompanied by short talks on Sickle Cell Disorder and, most importantly, the provision of free genotype and blood group testing. Since its inception, over 20 secondary schools and over 1500 youths have participated in this event.  

They have received free tests and education on the disorder – previous events have been held in Yaba, Ajegunle, Surulere and Ikeja.

A BETTER YOU HEALTH CLUB

is a weekly club where for secondary schools (especially public schools) will be taught about healthy living and general health awareness techniques.

The aim is not only to teach the students
about sickle cell which is a major focus, but to teach preventive health care and nutrition.

Pupils are trained to have a greater
understanding to break myths and stigma and to also become ambassadors of sickle cell by take the real message of sickle cell to the society especially among their peers.

RED UMBRELLA CHARITY WALK,

an annual event designed to create awareness, advocate and disseminate information about sickle cell to the grassroots communities and the society at large .
It is held every year to commemorate the June 19th world sickle cell day and involves a coalition of Sickle Cell NGOs in Nigeria, with an effort to bring to fore the effects of sickle cell disorder to an individual and society at large.

The Red Umbrella walk involves 1000 participants from all works of like from captains of industries, celebrities, government personnel to friends of sickle cell and people living with sickle cell.

SUPPORT
THERE ARE MULTIPLE WAYS YOU CAN HELP OTHERS TO CHANGE THEIR LIVES
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The XTRA CARE SICKLE CELL FREE CLINIC

is a free clinic for people with sickle cell.  The free clinic runs every third Saturday of the month between the hours of 9am–1pm at our head office in Surulere.

With a focus on grassroots, the clinic serves as a walk-in program with the aim of providing adequate health care to the beneficiaries,  though free drugs, consultation and counseling a where possible referrals are made to a hospital for further treatment especially for underprivileged people living with Sickle Cell Disorder.

DeeTeeO CSS (31)

CLUB STILL STANDING

CSS is a club for youths/young adults initiative of SAMI, with a vision to empower, inspire, educate, motivate and change mindsets of youths especially those living with sickle cell anaemia into creating a healthy lifestyle and a better future.

MISSION:

To create sustainable programs through creative, entrepreneurial, career, healthy living education tools for the sole purpose of developing the capacity of youths especially those living with sickle cell. This we do by holding various events and programs on various topics from leadership, relationship to  health, business and career talks

SEE WHAT YOU CAN DO TO HELP
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